While in the middle of preparing dinner last night, I received a phone call from my neurologist (he'll remain "my" neurologist until such time as we find who better suits our needs). He had some concerns. Here's the abbreviated phone call:
Doctor: [He explained that there was some confusion on some paperwork that he received that made it sound as though I was still on solu-medrol. How many days was I on it for?]
Me: [I explained that I was only on it for 5 days, 1 at the hospital and 4 at home. I thought to myself if he looked at my file, he may have answered that question for himself. But ok.]
Doctor: [Talked a bit more about the confusion.]
Me: [Tried to clear up the confusion.]
Doctor: "How are you feeling? How are your symptoms?" ["indicates exact words]
Me: [I explained that I was feeling much better, that the right side was normal, left side was returning to normal.]
Doctor: "That's great news. Ok. Well, good luck."
Um... good luck? Seriously? There was no question as to whether we'd decided on a treatment plan, whether we'd looked into getting a second opinion. Just luck. Well, had I known that was all I needed...
Good luck.
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2 comments:
Ugh. How frustrating. And weird. I'm so sorry.
Do you feel like you need more clarification?
Hello,
I'm sure you are getting lots of well-meant advice. Sorry, but here's some more: there is some evidence that certain bacteria make MS more progressive. Eliminating them can slow the progression.
Here's a link to Sarah Longland's page on her experience. She had an EDSS of 7, now it is 2 or less: http://www.avenues-of-sight.com/Sarahlonglands-MSpages-2.html Her husband is a doctor, and he supervised her treatment. There's further information at http://cpnhelp.org.
I am so sorry this has come to you. My daughter-in-law and my sister-in-law both have MS. It's a tough road.
Also, I have to say: most neurologists seem to choose that specialty because they decided too late that they really didn't want to be a doctor. I hope you can find an exceptional one.
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